Mr. Grinch Was A Migraine

christ3You’re a mean one, Mr. GrinchOh yes, Migraine is very mean indeed there is not one little thing nice to be said about Migraine. Not one. Well I guess this is not exactly true, I have met some very lovely and amazing people on my Migraine journey, warriors who have become like family to me. 

You’re a monster, Mr. Grinch, Your brain is full of spiders; Migraine is not only mean it is a monster, one who can take over our lives and become totally debilitating. Leaving us with horrid head pain(spiders), light and sound sensitivity, aphasia, dizziness, gastrointestinal distress and worst of all take us from our families. 

You’re a vile one, Mr. Grinch
You’re a nasty wasty skunk
The three words that best describe you are as follows, and I quote
“Stink, stank, stunk”!;
Migraine disease does not discriminate its reach is long, to include the child, as well as the elder. Coming in many different forms, all of them as nasty and vile to live with as the next. Each with their own symptoms, just like each of us have our own triggers and they all, I quote “Stink, stank, stunk”! 

You nauseate me, Mr. Grinch
With a nauseous super “naus”!
You’re a three-decker sauerkraut and toadstool sandwich with arsenic sauce!; 
Nausea one of the most dreaded of Migraine symptoms and smells are one the most horrible of Migraine triggers, once you step outside of your smell safe zone, all bets are off. I have at least one Migraine friend, who would get dreadfully ill at the whiff of a sauerkraut and toadstool sandwichActually the thought of it rather turns my stomach. 

“How The Grinch Stole Christmas” has always been one of my favorite Christmas movies and “You’re A Mean One, Mr. Grinch” a favorite song. It wasn’t until I was thinking about using the Grinch in a different approach, that I realized how much the lyrics rang the Migraine bells for me. I hope that you enjoyed reading this, as much as I enjoyed writing it! I wish you many “Mr. Grinch” free days between now and Christmas! 

Live with hope,
Roni

 

“You’re A Mean One, Mr. Grinch”
Written by Dr. Seuss, Composed by Albert Hague

Stock credit: Storyblocks

Tale Of The Naughty Spoonie

spoon4

There once was a spoonie who had much to do

She worked and worked days and nights too

All the while forgetting about her spoon supply

When her work was almost completed she found herself depleted

A trip to the cupboard found it bare

No more spoons where there

As much as I hate to admit it this was me for the whole of the past week. There was so much that needed done. We had our carpets cleaned on Tuesday, so the house had to be decluttered, which it sorely needed. We put our Christmas Tree and other decorations up on Wednesday, so the boys could enjoy it for Thanksgiving. Then finished putting away all of the boxes Friday morning. 

We went to my brother’s house for Thanksgiving on Thursday, (which is our custom)and had a great time. I saw my younger brother sober, from both drugs and alcohol for the first time in years. That was something to be very thankful for! I wasn’t able to stay as long as I would have liked, due to a migraine and my family is very loud. Always have been and always will be, at least I was able to make it there this year. Another reason to be thankful for. 

By the time I got home I could hardly walk, due to low back pain from degenerative disc disease, that flares up now and then, especially when I’m on my feet to long, or have been doing too much. I was also in a severe fibromyalgia flare on top of a horrid migraine. Talk about a triple whammy! Rick rubbed some wonderful CBD Lotion, (a very kind and amazing friend sent me)on the worst pain areas and I went to bed at 7:15. 

We always have our immediate family Thanksgiving on the Friday following Thanksgiving. I woke up in a lot of pain and the thunderstorms we had all day sure didn’t help. I was so angry with myself for overdoing and not being at my best while my son’s were here. I love every moment I get to spend with them. As I should have known they both understood, as did the rest of our crew, everyone jumped in and the meal came together perfectly. That is something else to be thankful for! 

I’m still in a lot of pain today, but I learned a valuable lesson, don’t use up all of my spoons for the week in about two days. If I do I’m going to be in for a world of pain! I like the spoons pictured above, they are not empty spoons, they’re filled with spices. We not only need spoons to live our chronic life, we also need some spice, life without spice is very dull. This is me, back on track living a spicy spoonie life!

Hmmm, since I’ve been naughty I wonder if Santa will still bring me a gift? 

purplegift1 

Live with hope,
Roni

 

Stock credit: Storyblocks

 

 

 

I’ve Got Plenty To Be Thankful For

thankyou2“You simply will not be the same person two months from now after consciously giving thanks each day for the abundance that exists in your life. And you will have set in motion an ancient spiritual law: the more you have and are grateful for, the more will be given you”
― Sarah Ban Breathnack

This melody has been going through my mind the last couple of days, “I’ve got plenty to be thankful for”. It’s the line of a song from a classic movie, starring Bing Crosby, Fred Astaire and Ginger Rodgers, ‘Holiday Inn’. I love the classic black and white movies. Despite migraine and chronic pain, I still have plenty to be thankful for. 

I have a wonderful, supportive husband, a loving family, who cares and gets me. Terrific friends in the migraine community, who are always there with words of support and encouragement. Via text, Messenger, phone calls, lovely cards in the mail and I keep everyone them in my keepsake box. Feeling all that love gives me the strength to carry on in my journey, one day at time. That is how I live while on this journey with migraine and chronic pain, one day at a time. 

I have found that if I try to look too far down the road anxiety sets in. Because I am then dreaming of the day I’m cured of migraine and all the wonderful things I could do again.  That is a great dream for sure, but dreaming too big can lead to disappointment and then to losing hope. I’m very grateful for the hope that I’ve been able to keep burning inside of me. To lose that hope would be a catastrophe of a magnitude I cannot imagine.

Many, many times a year, I receive a blessing of some kind from either my migraine family or my physical family. These blessings mean the world to me, because they were given from an open and caring heart. Building up thankfulness upon, thankfulness in my heart. Have you a story to tell of receiving a blessing just when you needed it, that you are thankful for? Please leave your story in the comments, everyone loves to hear uplifting stories like these. Wishing all of my readers a very Happy Thanksgiving! 

“Life without thankfulness is devoid of love and passion. Hope without thankfulness is lacking in fine perception. Faith without thankfulness lacks strength and fortitude. Every virtue divorced from thankfulness is maimed and limps along the spiritual road.”
― John Henry Jowett 

Live with hope,
Roni

Photo credit ~ Story Blocks

 

 

Even Warriors Need To Rest

“As important as it is to have a plan for doing work, it is perhaps more important to have a plan for rest, relaxation, self-care, and sleep.”
― Akiroq Brost 

I recently took a week-long break from Facebook, no I didn’t have withdrawal symptoms, or cravings to get back on before my week was up! Instead I spent those hours and yes, time spent on social media, can easily add up to hours a day, reading, playing with my new kitty Sugar, having actual conversations with my husband, Rick and generally just letting myself breathe and relax. The last couple of weeks before this had been very stressful for our family. Rick’s oldest son, age 39, died unexpected and under suspicious circumstance. Though I wasn’t close to Kyle, he was Rick’s son and Rick needed my full support. If you are a spoonie, you can see how this situation quickly depleted my daily allotment of spoons. A week of self-care was sorely needed and did me a world of good. 

Now I want to talk about another reason we Migraine warriors need rest. For a very long time I was under the assumption that, letting people know you took a cave day, was the same as admitting defeat. Migraine Warriors are tough, they don’t let a pesky Migraine keep them from living their life, they power through, grocery shopping, cleaning, cooking and keep up with their exercise routine. When I read accounts like these, I thought to myself, what am I doing wrong? During a Migraine attack I don’t even want to see sunlight, my head is staying on my pillow with an ice pack and the only exercise I’ll be doing is the trips to the bathroom to vomit or deal with diarrhea! Believe it our not there is stigma placed on us by our peers, though they may not realize that they are doing so. 

Recently I had an epiphany after reading two blog posts about rest, it completely changed my mindset on the need to rest and still be a Migraine warrior. First rest isn’t a naughty four letter word, it is a necessity for our bodies that battle pain 24/7. I have days that fatigue literally drains me and I feel like I’m walking in wet sand. Living with Migraine and chronic pain can drain your internal battery pretty darn fast. So it stands to reason that one will have to recharge, this is where rest comes in. Grab a cup of tea and a good book, or take a nap. Your body will tell you when it is fulling charged. There is no guilt here, would you feel guilty if you were tired due to cancer treatment? NO you would not! You are still very much a warrior, just a tried one and why not? Fighting against Migraine everyday is very hard work, both physically and mentally! 

If a Migraine attack is severe enough for you to need a dark quiet space use your cave. Again there is no guilt here, your body and brain needs rest and treatment. It is better to try to nip that Migraine attack in the bud, rather than pushing through it and avoiding the  possibility of a longer Migraine cycle. Don’t let the fear of stigma keep you from speaking about your Migraine, you don’t have to go into detail. Yes, speak you Migraine, the more advocacy efforts the less stigma. Shame on anyone in the Migraine community who would make a fellow Migraineur, feeling less of a warrior, if they need a rest, self-care or cave day. We should strive to thrive and by being a supportive and encouraging Migraine warrior, you are helping a fellow Migraine warrior thrive.

I came across this description of a Woman Warrior, while looking for the best definition of warrior. It really spoke to me!

“Women warriors possess a determined spirit, a “can do” attitude that drives their actions towards their goals. When faced with limitations, disappointment or opposition, a warrior woman only gets more determined to make what she envisions happen. She won’t take “no” for an answer and will find a way barrel through obstacles until that “no” becomes a “yes!”

I know many Women Warriors who fit this description when it comes to their Migraine treatment. They are not willing to sit back and do nothing, because one, two, three or six, treatments didn’t work. They keep pushing, advocating for themselves to try more treatments, whether they be infusion or oral. They will not hear “no” or there is nothing more we can do. No way! They will keep looking, researching, never giving up. That is a Migraine warrior! 

Live with hope,
Roni

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Sugar in Dive mode! lol 5 months old & we love her to pieces! 

 

 

**Dedicated to:  Angie Glaser who taught me about the concept of rest and to never be ashamed of it. You inspire me Angie with your strength, openness to speak your mind, loyalty to your friends and willingness to speak for the migraine community!